Feb 29, 2020 is Rare Disease Day
Every person affected by GBS, CIDP, or variants such as MMN, will have access to early and accurate diagnosis, expert interdisciplinary treatment and support, and through continued research, a cure will be developed.
To engage in advocacy, including treatment access,(at the federal, provincial and grassroots levels) to improve the quality of life for individuals and families affected by GBS, CIDP, or variants such as MMN.
GBS/CIDP Foundation of Canada is a registered Canadian charity founded in 2003. Our foundation continues its long history of connecting patients and their families with caring and dedicated volunteers who have been affected by GBS, CIDP, and variants, such as MMN. It is our hope that no patient or family will have to go through any of these disorders alone.
Along with this patient-to-patient support, the foundation has proudly established a National Medical Advisory Board of 18 Neurologists trained in the diagnosis and treatment of our disorders.
We are committed to building relationships with experts in rehabilitation and support disciplines who understand the challenges facing our patients during and after recovery. Our latest goal is to create a council of professionals that will help guide and educate patients on best practices in their disciplines.
We support Canadian research that will improve the diagnosis, treatment, and rehabilitation of patients affected by GBS, CIDP, and variants. Our ultimate goal is to help pave the way to a cure. We proudly support IGOS and the Canadian contribution to the International GBS Outcome Study.
February 29 - Rare Disease Day