Join the Fight against CIDP and GBS. Your gift will be matched!
Richard and Sanâa share a powerful vision: a future where people diagnosed with CIDP and GBS receive timely diagnoses, access to improved treatments—and where, one day, a cure is within reach.
Why is this cause so close to their hearts?
These rare and often misunderstood conditions can profoundly affect a person’s mobility, sense of comfort in their own body, and for many, lead to paralysis and extended hospital stays.
Richard is living this journey as a CIDP warrior. Sanâa stands beside him every day, fighting against a disease that steals energy, independence, and quality of life.
Learn more about Vision Sanâa and Richard, a fundraising initiative to advance research for CIDP and GBS.
GBS/CIDP Foundation of Canada – Who We Are
In 2003, GBS/CIDP Foundation of Canada a patient organization providing support, education, research, and advocacy, was founded so that no patient or family would go through GBS, CIDP, and variants such as MMN alone.
Vision: Every person affected by GBS, CIDP, or variants such as MMN, will have access to early and accurate diagnosis, expert interdisciplinary treatment and support, and through continued research, a cure will be developed.
Mission: To engage in advocacy, including treatment access (at the federal, provincial and grassroots levels) to improve the quality of life for individuals and families affected by GBS, CIDP, or variants such as MMN.
Québec Liaison and CIDP Warrior Sylvain Bousquet, with Jennifer de Combe, Bilingual Program Manager, representing the Foundation at the 41st AMUQ Scientific Conference on Emergency Medicine in Québec City.
What are CIDP and GBS?
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) and its variants, are rare progressive conditions, which can be characterized by the onset of weakness, numbness and tingling, which can lead to the paralysis of the legs and arms and effect other areas of the body, and it is not uncommon for individuals to endure significant pain.
Guillain-Barré Syndrome (GBS) and its variants, are rare conditions which can be characterized by rapid onset of weakness and, often, paralysis of the legs, arms, breathing muscles and face, in some cases leading to complete paralysis requiring life-sustaining hospital care. Often accompanied by excruciating pain.
Join the Fight
Fonds Sanâa et Richard will double-match donations up to a maximum of $50,000.
GBS/CIDP Foundation of Canada will also seek other collaborations for funding, ensuring contributions have a significant impact.
We Aim to Raise $200,000 For:
- Building a validated CIDP patient registry to support emerging treatments reviewed by Canadian Drug Agency (CDA) and INESS Québec
- Promoting new CIDP treatment clinical trials
- Funding a research study important to patients:
- Exploring impact of aging on individuals who have CIDP
- Investigating the fear of CIDP and GBS relapsing
Your contribution will have a profound influence on the lives of patients and their families!
Providing hope for a better future.
Help Us Reach Our $200K Goal
See How Much We’ve Raised
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